So much ouchiness!

Fibro Symptom #1 = IBS
gut

I just can’t seem to be able to not have a poorly tummy right now, not sure I have been this bad in a long time! Trust it to be the time that I go home to visit the family… Feeling so bad that I have just curled up and used my heat teddy all day… Not great right now 😦

Just Keep Smiling

My fibro moment of the day!

I was cooking my beef for my sandwich wondered why it was so difficult to cut. I looked down and soon noticed I had been holding the knife the wrong way up and now have a nice cut in my finger! Flipped the knife the right way and my beef cut so easily. Tasted nice too!

Just Keep Smiling! 🙂

When fibro fog strikes it appears I have no words

I was just thinking about a ‘bad day’ I had a few days ago and realised I had no words for what happened. I had severe pain in my neck but as usual I battled through it and carried on with my day at work but I kept making simple little mistakes throughout the day (sign something else was going on) I finished work and went to do a little bit of Christmas shopping with a friend. This is when my problem really started, I suddenly could not remember what I needed. I got frustrated with myself but couldn’t even find the words to explain to what my issue was. Looking back on it now it is all quite clear to me (Fibro fog) however as much as I got frustrated this didn’t help my situation at all so I wandered around hopeless with no idea what I needed, chatting things through with my friend and little bits started coming back to me and eventually I got my shopping done (even if I did forget a few things, it was progress). brain fog

Anyway my point to this whole story is my friend must have thought I was a right weirdo….If I had the right words I would have explained everything…

Just Keep Smiling! 🙂 x

My 2 year anniversary!

Saturday 20th December marked my 2 year anniversary for my official diagnosis of Fibromyalgia and if I am honest it has been the most successful 2 years of my life so far…Let me explain…

Before being diagnosed I was all over the place, life was a complete mess and I was close to leaving university and just screwing everything up. Then came a rheumatologist who listened to me and tested me and gave me this diagnosis. Fibromyalgia. Something I had never heard of before and yet was not given much information about. I was left to go and research it myself. So anyway back to the story…

Since the diagnosis I stayed and graduated from University with a 2:1 Degree in Drama and now I juggle 2 jobs, both of which I love (in their own unique ways). I have a clearer head and I am able to work through things easier because in my head if I give up and let my condition beat me then I may as well not be here anymore, I should just give up on life. So I have worked harder than I have before and I am more determined to make something of my life.

Its amazing how something as simple as an answer can help.

Just Keep Smiling! x

Just a normal girl…

I feel like now might be a good time to tell you a little more about myself as my blog is currently full of posts relating to Fibro however that isn’t all I am. I am 23 years old. A recent college graduate who juggles two jobs. One doing what I love and one to be able to pay the rent.

My life is currently amazing, well until depression takes hold and then it doesn’t feel like it. I have been grateful to get work in technical theatre and be able to take a step closer to what I want to do as a career and I am really lucky to still have my other job. I am lucky because they work around my other job allowing me to take time and grow as a person.

Having two jobs isn’t easy but I wouldn’t change it at all. I am a person who loves to stay busy otherwise I have time to think and dwell on my condition and nobody wants to do that. Today was a big struggle as I have pulled a muscle in my neck so have been in severe pain all day however off to work I went and dosed up on painkillers, which to be honest didn’t really help however the mind set I had helped me get through the day. No way was I leaving or giving up. I rested as soon I got home but I think it would have been worse had I not gone to work. As usual I am always in pain but it is rare now that I take painkillers unless I really really need them. I seem to cope better being clean from any tablets as my head is clearer and thinking isn’t so hard or as confusing as it could be. You could tell I was ill today as my memory was rubbish, I was slow and often just lacked energy, but here I am with my feet up and a lovely gingerbread latte! What more could a girl need…

I am a hoodie addict, a serious hoodie addict. I have gained two new hoodies in the past two weeks with another one possibly on the way…Making the total over 100 after I have even given some away. Better than spending it on shoes or alcohol I guess!

I am a singer, will probably never sing in public!imagesCAZW7LNB
I have no idea in the direction that my life will take and I have no desire to push for an answer just yet. I am happy enough just seeing where life takes me for now.

Just Keep Smiling! x

Its the little things…

I have just got home from work and crashed. I just need to sleep but I know I will mess up my current (helpful) routine. I haven’t done anything different to trigger this, I think it may be a flare, I sincerely hope not other I might as well give in now.

I am the type of person who enjoys being busy, I don’t cope well during a flare when I struggle to do much as I have so much planned for this week that I don’t have time to be ill. I have developed a talent at hiding my illness even on my worst days as I don’t want sympathy off anyone, even though it would be nice to share my true feelings with an individual once in a while but then I always feel that they treat you differently when they realise how messed up you actually are.

I wish I could have some guy to just hug it out with when I feel bad and someone who will heat up my hot water bottle for me, its always the little things that help most. But that isn’t looking hopeful either. Nothing is looking hopeful right now.

But I just have to keep smiling! x

Can’t keep this a secret anymore

 

I am a fibromyalgia suffer.

It is so difficult for me to share that simple fact with the people that I know. And I don’t know why.

Well I do, I have this deep fear that they will treat me differently if they find out. I just want to be ‘normal’. Never again will I be just ‘normal’ but if they do not know then at least I can pretend I am and that I don’t suffer from an illness that cannot be cured. It is also an illness that people cannot see, one of the many invisible illnesses out there. The ones in which it is hard to believe if you cannot see. The one where you cannot understand how the individual is feeling unless you have been through it yourself.

I want to be a typical 23 year old who can just live. I know I can’t go out and dance all night like I want to because I would suffer so much for it the next day but instead I take pleasure in the times that I do enjoy and I have learnt how not to push myself too far even though I do keep so active. I have found for me that the more I do (even on bad days) the better I feel.

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I shall find a time to go into more detail further about what Fibromyalgia is but for now I’m tired and it is a lot of effort to write about but it shall slowly be done over time (Honest)

Just keep smiling, no matter how difficult it may be. x